June 20, 2014 Stem Cell Stimulation Begins – not enough funds for payment – Day 5
Posted: June 21, 2014 Filed under: Uncategorized | Tags: Dr. Fedorenko, HSCT, PPMS 16 CommentsI’m calm about the treatment beginning. I’ve received my first dose of steroids this morning.
However, I’m extremely nervous that I have not raised enough funds to pay for the treatment.
I hoping some wonderful benefactor will come through at the last minute. Time will tell.
Yesterday, 7 of us left the hospital grounds. It was my first shopping trip to a local grocery store. I made it down half one aisle and my iphone was gone. I got dill, cilantro, arugula, tomatoes and cucumbers. Not my best day.
Irina is on the cleaning staff and she’s a medical assistant too. She works 24 hour days, smiles and teaches me Russian too. She’s going on vacation for 10 days, but I will see her when she returns.
Marian and Robert came during breakfast. We tidied up and got organized once again. Tried to unsuccessfully set up viber on my ipad now that my phone is awol. Had trouble with skype as well. While I was figuring out if there was any way to get my phone back, Marian and Robert went searching for more supplies for me.
They did some exploring along the way.
Back at the hospital, we gathered for some bonding. Marian has to stay covered, although we are not sure why.
At least she should have served us food : )
Sheila had undergone a full day of testing. Carol may have been picking up her son, Harry from the airport.
Beautiful Church right outside the entrance to our rooms.
We explored and found a beautiful green house.
Marian and Robert’s last day. They tried to take as many photos as possible.
thinking of you every day, sending good thoughts and prayers. sorry about your phone. US tied Portugal in the World Cup. Take care. Joan
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Thanks so much Joan!!!
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To all of the friends and family of Nancy, I just wanted to let you know that you have a lovely wife, mother and friend. She is such a delight to be with. I would not be here if it would not have been for Nancy. She is the one that pushed me to send my paperwork into Russia. I am so blessed to be here with her. Her sister and brother-in-law were so kind and helpful. I know my time here with Nancy will be such a blessing. I’m praying that her fundraising continues to grow as I know it’s very stressful to be worried about that and to go through this treatment. I know there are many people that love this women and want to help her. Thank you Lord for bringing this woman into my life to share this experience with!
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Sheila,
Thanks so much. Not sure I can stop crying. You know I need you as much as you need me. We are a great support team and I’m so glad I encouraged you to apply for treatment here. Meeting Dan and seeing how caring and loving he is to you and how helpful he is to all of us here is so heartwarming. OK. I’m calming down. I love you, your compassion and your strength!
For you to wheel in to check on me is such a sweet thing to do too. I will visit after I do my exercises!!!! ❤ ❤ ❤
PS I fell today and managed to get my self up after a bit…
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Hi Nancy, I haven’t met you yet but I’m a neighbor/friend from Shipley’s. Sending you blessings and just a small donation from Maryland. I have all fingers and toes crossed for you— may you find success with these treatments!
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Jennifer, I saw the donation and saw you were a neighbor. I’m looking for any kind of donation to help me meet my goal and yours really touched me. I thank you and Al and I do hope to meet you in person to thank you again. Please feel free to share my blog with anyone you know that has or knows someone with an autoimmune disease. We are so grateful to be able to get the help we need. Sending you all my love.
https://nancyvsppms.wordpress.com/
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so sorry about your phone…I guess there are people who do crappy things everywhere!!! glad you have iPad…wonderful pictures…you look so healthy and strong…and it is so great that you will be able to BE THAT after this process…I understand it doesn’t reverse everything…but at least MS stops progressing…YEA!!! xoxox
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Dearest Joan, We have a video of a man near me and 4 seconds later, I could not find my phone.
My sister was trying to take a photo, but had it on the wrong mode. It’s inconvenient, but it’s just a thing. Now, I will be forced to figure out all the nuances of my ipad : )
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I’m so glad things are going so well. Irina is the one who shaved my head. She used to talk to me about her “garden” in her “village” and her beautiful daughter. She is so sweet. Happy, happy, happy for you!
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She is such an interesting person! It’s a pleasure to have her visit!!!
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Wendy and I are so very happy for you!
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Thanks, Eddie & Wendi!!!
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I’m sorry to hear about the theft of your iphone. I did try to call you yesterday and again this morning, before reading of what happened. There was no answer either time.
Howl like Desi if you must. Do whatever you need to do to feel good and keep up your spirits.
I hope you are able to set up Viber on your ipad. It was great to be able to hear your voice. In any case, keep on keepin’ on!
We’ll hear more about you when Marian and Robert return. Looking forward to that! Enjoy that veggie salad (while you are still able to eat raw foods.)
Til next time…soon, xo
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Lots of lovely and lively people here! Everything will work out well if I can pay the hospital bill. Still quite short. Marian are Robert helped me so much. I have a good team here now! Spirits are good!
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Wonderful Nancy ! Sorry about your phone though !
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I’m sorry too. I was not careful : (
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