In January 2008, I was diagnosed with Primary Progressive Multiple Sclerosis (PPMS). PPMS is a very rare form of Multiple Sclerosis. There is no cure and no FDA treatment anywhere in the United States for this kind of MS. This disease is slowly paralyzing me from my legs up. After searching the internet for clinical trials and studies, I found Hematopoietic Stem Cell Transplant (HSCT). It is my only hope of stopping or slowing down this disease, and offers me a 70- 80% chance of stopping the progression. I am going to Moscow in June for treatment. I will receive a high-dose immunosuppression followed by a transplant of my own stem cells, called an autologous stem cell transplant. This will reprogram my immune system so that it stops attacking my brain and spinal cord. Despite my increasing limitations I’m feeling very positive about my future after HSCT and am looking forward to being able to walk without assistance and be independent once again.
It will cost approximately $60,000 for everything including flights, visas, hotel before admission, hospitalization and aftercare. Unfortunately, insurance will not cover the expense of this progressive treatment and our financial situation is NOT what it was in the past. We are humbly asking for your help with the cost. We would appreciate any financial assistance you can provide. Prayers are greatly appreciated too. Please spread the word to your friends and family too.
To send your love and support via mail, please send to: 1716 Reynolds Street, Crofton, MD 21114 ***just moved
Let us know if you have any suggestions for fundraising events.
Thank you again for your kindness.